It is extremely difficult
to find compatible bone marrow for blood
cancer patients. Even if you find it, there
is still a chance that it could be rejected
in a transplant. What this means for the
patient is that the recovery and treatment
process will inevitable be prolonged. Leung
Hung Kin's own experience reflects this.
After his bone marrow transplant, rejections
occurred, and while he was still extremely
weak, he insisted on sharing his case with
us so he could help other blood cancer patients:
I had the bone marrow
transplant operation three years ago, my
sister donated the bone marrow to me, but
unfortunately rejections occurred in both
my lungs and my skin. My immune system has
weakened since then and I now go to the
hospital quite often¡KI'm told that it could
be a long, long time before I fully recover.
To improve the life
of leukaemia patients, I would suggest setting
up an inquiry hotline and/or publishing
a simple brochure to answer common questions
pertaining to blood cancer. Routine matters
such as special diets, medicinal side effects,
etc, can all be addressed through these
vehicles for communication. By doing so,
patients' minor problems can be solved,
sparing our worries and the burden of the
medical staff at the same time.
Psychological comfort
is also very important to leukaemia patients.
It would be a good idea to have a common
room for the patients to stop by for a chat
and to share their experiences and support
for each other. Patients who are scheduled
for bone marrow transplants usually have
to stay in the hospital for around six weeks
for their health examination, so it would
be nice to install more TV channels to break
up the monotony.
Lastly, I think most
of the patients would like to know more
about the latest developments in medical
treatment and prescription details. At the
moment, we can only receive standard medical
treatment. It would be ideal if patients
were informed of new medical developments
and alternative treatments.
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